Sunday, April 14, 2019

28, from south Texas

In my opinion my biggest accomplishment is Probably getting to present a paper at a grad student conference as an undergrad

I wish that neurotypicals understood about autism is that:
That there’s such a variety of presentation. Someone told me literally yesterday that people can’t be autistic unless they’re a ‘Sheldon’ (Like from Big Bang Theory), and it’s such a harmful, ignorant stereotype.

Resources that worked best for me are:
Online support groups for autistic folks. Being able to talk to others with similar experiences has helped me so much figuring out how to manage things

I want to tell those who are also autistic that:
You’re wonderful just the way you are, you don’t have to pass as allistic to be successful.

My parents figured out I was autistic as a kid, but never told me. I did almost all the same things my (DMAB) cousin did as a kid, and he got diagnosed, but because I’m DFAB, my pediatrician told my parents not to bother getting me officially diagnosed. I didn’t realize until I was an adult, because I thought everything was just because I have anxiety and ADHD. It wasn’t until I started dating someone who had been diagnosed as a kid, and they suggested I might be on the spectrum, that I started to suspect.

When my mom finally told me she’d known since I was a kid, it was such a relief. I’m not just weird! But I was so angry and upset that it was kept from me for so long.

Today I feel great about it. I’m part of a community of amazing people and I wouldn’t trade that for the world.

I didn’t understand why I was so different, I didn’t understand why I react to things the way I do, I didn’t understand why people insisted I did things that made me uncomfortable and didn’t seem to have a point. I thought I was a broken loser because I was ‘gifted’ but couldn’t manage to do things other people insist are easy and basic.

My partner who was diagnosed as a kid pointed it out to me before we were even dating. I started lurking in autism facebook groups and realized that it was something to look into.

My parents and pediatrician agreed I’m autistic, but in the 90s it was really, really hard for DFAB kids or kids with atypical presentation to be diagnosed, so my pediatrician told them to just focus on my ADHD, because I would likely only get diagnosed with one

Finding places that actually diagnose autism in adults is a nightmare, and it’s not covered by insurance so it’s ridiculously expensive. Plus, anyone who meets some arbitrary minimum function level has to fight to convince the doctors that it’s possible they can have autism and that it’s worth a diagnosis

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